The 12th of May is the international ME/CFS awareness day.
Started in 2009 by a Canadian ME patient, it is represented by a royal blue ribbon.
Next year I've been sick for 10 years. There are no medication, no form of treatment, nothing that will make me well and since there seems to be no easy answers a lot of doctors and scientists just give up.
I'm not giving up though. I hope to some day be well.
Until then I will live my life as best I can with the ME.
You're such a beautiful person, inside and out. I hope you all the best. (This is the first time I hear about ME/CFS so I had to/wanted to google it. I really admire you for being so open about it.)
ReplyDeleteLove, Satu
Indie by heart
Thank you ♥
DeleteIt affects my life in practically every way possible, but I live alongside it. And even though it's hard at times, I'm not letting it dictate my mind or bring me down.
I don't write or talk about it a lot, it just sort of is. And that's ok.
I am myself, and I'm a good person. Sick or healthy :)
Tommelen opp Marita!
ReplyDeleteDu er flink å holde motet oppe synes jeg :)
Og seee lille snuppa med sløyfe da! Så fin ♥
Planen med glasset i døra er ikke helt spikret enda, har to forskjellige muligheter men må teste litt for å se hva som blir best :) Oppdatering kommer!
Ha en fin lørdagskveld,
Signe
Takk. Det er ikke alltid lett, men jeg er heldig som har mye støtte rundt meg :)
DeleteJaa, hun er finest ♥ skulle bare kjøpt litt lengere bånd så hun kunne hatt skikkelig sløyfe.
Ja, for akkurat glass er det ikke så mye å gjøre med i mitt hode liksom. I alle fall når det er struktur på det! Vanligvis kan man jo bare slenge på noe folie eller no slikt, men det går jo ikke med struktur-glass..
♥
Nice picture with the cat!
ReplyDeleteKatharina from →le cours des choses
your photos are inspiring and your story is triumphant Marita! i can imagine that when the light dulls behind your beautiful eyes because of this challenging condition that your spirit inhales deeply into the goodness that comes from your passions. like photography, design and inspiriting others along on their own road rashed travels through life.
ReplyDeleteyou are encouraging and empowering, you are brave and wise, you are beautiful inside and out! many blessings!! xo ♥